Question: What is everyday life like? What is the quality of life?

Answer: Life is almost like an average persons life. The only thing is that physical activitys are limited both at work and recreation. Also the common body check ups. A person with Marfan Syndrome should visit different doctors since it can affect different parts of the body. Emotional and psychological needs should be addressed too.

http://www.marfan.org/marfan/2324/What-to-Expect
http://www.marfan.org/marfan/2439/Living-with-Marfan-Syndrome