Sunday, November 13, 2011

Question: How can the disease be treated?

Answer: Marfan Syndrome gets treated for a lot of different places on your body.

Bones and Joints: Getting annual elevations for your bones and joints are important. If they grow in a disfigured way it can prevent certain organs from functioning right. Also it could cause it to be easily broken.
Eyes: Regular eye exams are necessary to correct any eye problems. You can get eyeglasses or contacts. In some cases surgery will be needed.
Heart and Blood Vessels: Getting echocardiograms are important to ensure that your cardiovascular system is working properly. Drugs, such as Beta-Blockers, can be taken to decrease stress on the aorta. Surgery should be performed before the aorta reaches a certain size and is at risk for tear or rupture. If a person is experiencing chest or abdominal pain he or she should go to the emergency room.
Nervous System: If dural ectasia develops, medication may be given to decrease any pain associated with it.
Lungs: People with Marfan Syndrome should not smoke because they are already at risk for heart problems. Any problems with breathing should be assessed by a doctor. Sudden chest pain can be made worst by taking a deep breath. Shortness of breath or dry coughs may be signs of spontaneous pneumothorax. Spontaneous pneumothorax  requires immediate medical attention.
Physical Activity and Exercise: Because of weak blood vessels and problems with heart valves, eyes, and skeleton collision/contact sports are dangerous for people with Marfan Syndrome.

http://www.marfan.org/marfan/2415/Treatment

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