Question: How possible is it that a cure will be found?

Answer: There are no cures for Marfan Syndrome and will most likely never be because it affects almost every cell in the entire body. There are many treatments though that allows a person to live a normal life.

Question: What are some organizations that can help families cope with Marfan Syndrome?

Answer: Here are a two of links to organizations that help people with Marfan Syndrome...

http://www.marfan.org/marfan/2307/About-the-NMF
http://www.marchofdimes.com/404.html#

Question: What is everyday life like? What is the quality of life?

Answer: Life is almost like an average persons life. The only thing is that physical activitys are limited both at work and recreation. Also the common body check ups. A person with Marfan Syndrome should visit different doctors since it can affect different parts of the body. Emotional and psychological needs should be addressed too.

http://www.marfan.org/marfan/2324/What-to-Expect
http://www.marfan.org/marfan/2439/Living-with-Marfan-Syndrome

Question: How can the disease be treated?

Answer: Marfan Syndrome gets treated for a lot of different places on your body.

Bones and Joints: Getting annual elevations for your bones and joints are important. If they grow in a disfigured way it can prevent certain organs from functioning right. Also it could cause it to be easily broken.
Eyes: Regular eye exams are necessary to correct any eye problems. You can get eyeglasses or contacts. In some cases surgery will be needed.
Heart and Blood Vessels: Getting echocardiograms are important to ensure that your cardiovascular system is working properly. Drugs, such as Beta-Blockers, can be taken to decrease stress on the aorta. Surgery should be performed before the aorta reaches a certain size and is at risk for tear or rupture. If a person is experiencing chest or abdominal pain he or she should go to the emergency room.
Nervous System: If dural ectasia develops, medication may be given to decrease any pain associated with it.
Lungs: People with Marfan Syndrome should not smoke because they are already at risk for heart problems. Any problems with breathing should be assessed by a doctor. Sudden chest pain can be made worst by taking a deep breath. Shortness of breath or dry coughs may be signs of spontaneous pneumothorax. Spontaneous pneumothorax  requires immediate medical attention.
Physical Activity and Exercise: Because of weak blood vessels and problems with heart valves, eyes, and skeleton collision/contact sports are dangerous for people with Marfan Syndrome.

http://www.marfan.org/marfan/2415/Treatment

Question: What is the life expectancy of someone with Marfan Syndrome?

Answer: The life expectancy of a person with Marfan Syndrome is the same of an average person if they get early diagnosis and appropriate management.

http://www.marfan.org/marfan/2324/What-to-Expect

Question: What are physical symptoms of the disease?

Answer: Marfan Syndrome affects many different body parts so not all people with the disease will look alike. Although Tall skinny stature, long arms, and long legs are the most common affect.

http://www.marfan.org/marfan/2327/What-Does-Marfan-Syndrome-Look-Like?
http://www.flickr.com/photos/nationalmarfanfoundation/3201874472/in/set-72157612643340384/
http://www.flickr.com/photos/nationalmarfanfoundation/3201874414/in/set-72157612643340384/
http://www.flickr.com/photos/nationalmarfanfoundation/3201874900/in/set-72157612643340384/

Question: How is the disease diagnosed?

There are many ways to be diagnosed for Marfan Syndrome. Here are four ways to be diagnosed...

Echocardiogram: This test checks on your heart, its blood vessels, and the aorta because Marfan Syndrome affects these organs.
Electrocardiogram: This test checks your heart rate and its rhythm. Sometimes the doctor will have to do an echocardiogram too.
Slit Lamp Eye Test: In this test the doctor will make sure your eye lens is not dislocated.
CT Scan: The doctor scans your lower back to see if  you have dural ectasia, a back problem that is commonly found in people who have Marfan Syndrome.

http://www.marfan.org/marfan/2406/Diagnosis